Up The Farway Tree

Health, Seb and Daily Mail (again)

I have just been taking it easy since my last post, and trying to give the IVs a chance to work. I finish them on Friday and am looking forward to a long lie on Saturday morning. The daily grind of making up and administering the IVs three times a day becomes quite boring after two weeks, so when you finish them its feels like you have just gained all this spare time during the day! I think the IVs have cleared my chest up so that's good news, although I still feel more breathless than I did a couple of months ago. However this may well just be a new level I have to adjust to, but I will just go with the flow and see what transpires. I think I need a little more time off work though, just to get myself back on track and my energy levels up again, as the IVs themselves can be quite draining. Fortunately I have both mum and Seb to keep me entertained. For different reasons I might add (mum tends not to roll about on the furniture and run off with my slippers).

Speaking of staying entertained, I was experimenting my new camera earlier today in the garden trying to get a photo of a Blackbird who was gathering worms to feed his chicks. Yet again as I crept up the garden in my stealth like fashion, I became aware of someone following me. It was of course Seb who was keen to join the birdwatching and photography session and had come to investigate. When I turned round he looked away and tried to act all casual, as if he just happened to be coming up the garden anyway and was not at all interested in what I was doing.



I tried to ignore him and carried on with taking photos but was soon distracted by a scrabbling noise behind me. Seb had managed to clamber onto a large mound of earth which was piled in the corner, and had now sitting there with his "look at me, am I not clever?" face on. He then pretended not to be interested and stared off to the side, as if enjoying the view. However I knew whenever I turned my back he was watching me but would quickly look off to the side again if I dared turn round. If he isn't climbing on top of things, he is climing into them, like yesterday when I thought he had gone missing from the garden but he was in fact hiding in a hole, peering over the edge like it was a bunker and he was a wee soldier. He really is quite a disconcerting dog at times.



The journalist who wrote the mysterious disappearing Daily Mail article phoned today. She said it was common for papers to over commission articles which then don't get published, so she was looking for other avenues to explore. She had suggested some of the weekly magazines (you know the human interest type idea). As much of a snob as it made me sound, I had to say a definite and final NO to that idea. The CF trust had originally asked my to consider one such magazine but when I had looked up the most recent edition I found headlines such as "Help! My baby's brain is leaking!" and "My eyeball exploded". I just could not face this kind of approach. I don't mind trying to help raise some awareness but not at the expense of my life story being used as a sensational coffee break read. I suggested that the Daily Mail still may use the story for transplant week, which is 7th-14th July. She thought this was a great idea, and was going to contact them regarding this, so I will let you know if I hear anything else. Don't hold your breath though, because I won't be!