Monday, March 30, 2009

Booklet is online!!!

The 'CF and Relationships' booklet that myself and Emily have been working on for AGES is finally available for download at the CF Trust website (click here). It has also gone to print and I should have the actual booklets by next week to send out to the CF units. So much time and effort has gone into this project and I am delighted with the final outcome. We have had good initial feedback from people with CF and I hope it is a useful resource for many people - it certainly covers lots of topics not dealt with elsewhere.

I have also been doing lots of work on Team Jac - making up groups and an action plan for the day. If you are walking you should have got an email today - so if you didn't, let me know! I can't believe how much we have raised so far and we are not finished yet :-) I also had a call from my local MP's (Jo Swinson) office in London - she is keen to help with publicity and we are going to set up a 'training walk' together and they will invite local papers to attend. You know how much I love being in the paper....

I was facilitating again last week and still really enjoying it! I don't mind reading up all the information before the session because it's strangely enjoyable re-learning medical topics I used to know and probably still should. I am sure the novelty will soon wear off! After the session I had coffee with my friends, which was lovely. One of my friends is about to have her first baby and I am so excited for her - I plan to be like one of those pretend aunties who the child later discovers is not a real aunty haha :-)

I had a busy weekend catching up with some gardening things - we spent Saturday buying and planting seeds for various vegetables, so fingers crossed we don't get a hard frost now. Maybe nothing will grow but it's good fun trying! I might post some photos if anything starts growing :-) I am also currently growing some bean sprouts in my study - apparently you just sit the seeds on wet kitchen roll and they grow. We will probably end up with about three bean sprouts for our stir fry....

We took Seb for a long walk at the park on Sunday but I didn't cope too well. All my joints have flared up for some reason and instead of my knees this time it's my hips and elbows - weird combination! I am also still getting this stitch pain in my wound when walking, so have left a message for the surgeon in Newcastle to see if I can get a sooner appointment. Hopefully it's nothing to worry about and probably just some adhesions from the healing - very annoying though! At this rate I may need carried most of the way around the walk - but there are 174 people - so I'm sure they can cope ;-)

Andrew also took me shopping for my 30th birthday present - he is getting me an eternity ring :-) It was quite hard to find something that looked good with my wedding and engagement ring but we did find a lovely ring. Only downside is that because I am a non standard ring size it will take a month to come in!! It would have been nice to have it before my actual birthday but I think it's worth waiting to get the ring I want and I am rather excited.

7 comments:

Anonymous said...

Well done to both of you.I know the amount of work you have put into this project and it's great to see it in print. I'm so proud of you.

Mum x

Me said...

my engagement ring took ages to order too cos I have slim fingers! The booklet is really good, but i've already told you so you know! xx

Tori said...

Stupid skinny fingers, I have then too!!!

I love the booklet it's very helpful!!

Anonymous said...

Your booklet is great
went to a really interesting talk on transplantation last night (well, kind of more on retrieval and ways to increse numbers) will tell you about it when we next meet up
love Clare

John Anne and Ross said...

Hi Jacqueline
Just read your blog. Glad you had a lovely busy weekend and got your ring. I managed to get in some walking, 5 and a half miles to be precise!! It was a lovely day on Sunday and I really enjoyed it and managed OK. The old legs were a bit tired but I bought the socks Andrew was talking about and my feet were fine so that's good. John and Ross did your walk today and learned a lot!! He will be sending you all the information he has gathered, all 26 pages!!!!! No, they enjoyed it and he found it a very useful exercise. Well done on the booklet. I have read the one you gave me and it was very informative and interesting reading. I learnt a lot. You both have obviously worked very hard and I'm sure it will be appreciated by many. Am really looking forward to meeting Emily on the walk. Well I'm off to bed. Only 3 and a half more sleeps till we go to Las Vegas! Will phone before we go. Take care
lol Anne John and Ross.
xxxxxxxxxxxxxxx

sophie jayne said...

Hello,
i'm on the CF forums and i thought i'd join the blogging thing. :)
I hope you dont mind me 'following' your blogs.
Take Care, :)

Edelle said...

Great booklet - well done. All I need now is to find a nice man ha! ha!!