We all had a great weekend down at my aunty's and it was a lovely way to round off mum's birthday celebrations. We had quite a long drive down on Friday but arrived to a fantastic meal - everyone had Beef Wellington but because that has pate in it I had steak instead....first time I have had it since my fundoplication and it was bliss!
On Saturday we headed into London for lunch time and Corey came to meet us as another wee surprise for mum. Lunch at Harrods (of course!) was lovely and we then went to the matinee performance of Wicked. It was a fantastic show (it's the story of the wicked witch from The Wizard of Oz) and everyone really enjoyed it. I think dad only fell asleep a few times ;-) On Sunday we did a bit of shopping and I managed not to get carried away. I did buy some new make up with my birthday money so I can glam myself up for the party on Saturday.
I picked Seb up on Monday - he gave me the cold shoulder and was very huffy! He did however have a great time at Gillian's and was up to all sorts. I think the worst incident by far was the stealing of her dad's salmon fillet. Yes, you read that right. Her mum had put the plates out on the table which was left unattended for a few moments and Seb was up on the table and grabbed the whole fillet - then ran. How embarrassing.
I have now found the link the online version of the local newspaper article. Embarrassingly when I went for the ultrasound today the nurse asked if I was the lady from the paper haha. Then I went into work and found the article photocopied and sitting on the reception desk for everyone to read - all good for awareness though! The money is still coming in for Team Jac and we are flying over the £4500 mark....go Team Jac :-) Click here for article.
I had my ultrasound scan this morning and they couldn't see anything wrong at the scar site. This is good news but in one sense is rather annoying because I am still getting lots of pain at that site when I eat or walk. I am seeing the surgeon on Tuesday though so will just have to wait and see if anything else has to be done. I am getting a bit nervous about going down to Newcastle and getting my year bronchoscopy - the apprehension that they will tell me something is not right when I am feeling so good! I would rather carry on in blissful ignorance. Hopefully there will be nothing but a glowing report but I will just have to go with the flow and take it as it comes. I am however looking forward to hopefully seeing Louise, as she will be at clinic the same day. She hasn't been doing very well and has been in her local hospital for the past few weeks - her liver is now playing up which is something she could do without just now. So keep the prayers going please.
I have had some good responses about the CF booklet - one of the consultants has contacted me about getting more printed copies because he thinks all his patients should have one! Also one of the doctors who helped with the booklet is hoping to link to the online version in a journal article that is due to be published. It makes me feel like all the hard work was worthwhile.
Well it is set to be a manic weekend so I may not be able to update until after I get back from Newcastle (hopefully Tuesday night if all goes well). I am heading to mum and dads for lunch on Saturday and the party at night, before heading to Newcastle on Sunday. In between all that though I am speaking at three Masses about the walk - the vigil and two morning Masses, so I am going to be busy busy, and rather tired!
I will leave you with a picture of Seb looking angelic...
5 comments:
Great article in the newspaper, that total is going great!
That's fantastic that a dr wants to link the relationship book in a journal article. Very exciting. What is the actual article on?
I haven't actual heard anyone say anything bad about wicked. Perhaps i should give it a go! :-)
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The article is on 'CF and contraceptive services and advice' due to be published in the journal of family planning and reproductive health. I hope they do link it - that would be cool! I also look forward to seeing the article because I don't know of many others looking at this area. Will let you know if it goes ahead (i know how you like a good journal article ;-))
Hi Jacqueline
Glad you all had a Fab weekend, sounds like it was a lot of fun and your mum certainly had a ball!! Maybe it's not so bad being 60!!! We are really looking forward to this weekend and it will be great to see you all again. Read the article in the Milngavie Herald and it was really good. You are a star!! Hope Seb doesn't get jealous!! Congratulations on your relationship book. It was excellent so not surprised at its success. Glad your scan was clear but it must be frustrating not getting to the bottom of the problem. Maybe it will just take time to sort itself out - hope so anyway. We are keeping everything crossed for your visit to Newcastle and are sure all will be well. In the meantime there's lots of celebrating to be done so roll on Saturday!!
lol Anne John and Ross
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Are you not allowed to eat Pate post transplant or do you just not like it?
(On a comments catch-up, so doing things in reverse ;)
Really glad to have caught you all that weekend and good to hear you liked the show. The CF book is a really good read too, well presented and nicely done. Def should get it out there to as many places as you can, it's essential reading. xxx
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