Up The Farway Tree

Perfect Patient

I had a glowing report at transplant clinic so now have a 6 month reprieve until my next visit - can't believe it will be nearly Christmas when I go back!  My oxygen levels were 100%,  blood pressure spot on and lung function was exactly the same as last time at 107% (2.99L).    For some reason my lung function is always lower at CF clinic  - probably just a different machine and also at transplant clinic the lady turns the monitor round so I can see the graph as I blow which I think helps me do even better.   It does however make me quite anxious as I am never sure if there has been a drop or if it's just the machine - I hadn't realised how anxious I was until after the lung function tests were over!  When I went into see the Prof he had a visiting surgeon from Barcelona with him and he said they had just been sitting admiring my chest x-ray.  It's quite sad when I take that as a huge compliment haha.   I also asked about pain meds for the joints and there are some anti-inflammatory I might be able to use if it gets really bad but I would need my kidney function monitored at the same time.  I am just going to stick with the regime I use for my sinuses but good to know I have other options as they are being rather troublesome at the moment.  

Anyway, overall I couldn't have asked for a better report so am more than happy and continue to be amazed by this wonderful gift.  I also managed to pop up and see Victoria on the transplant ward and she was looking great!  She is progressing really well and is now moving to the flats so will hopefully be heading home soon.  Great to hear another success story and it does illustrate the need for more donors and the dramatic change it can make to someone's life.