Helloooooooo!

Hello and Welcome to Jac's secret blog ;-)  I hope I haven't made it too much hassle for people checking in, but at least I don't feel quite as exposed now!  The decision was largely fuelled by some boundary issues with one or two patients at work.   I use my maiden name at work to maintain my privacy and my blog was never set up with my full name.  However over the years I have added various links so that by googling my my maiden or married name it would only be a few steps to finding my blog.  In many ways I don't really care who reads it and have always hoped my journey would help other people with CF or awaiting transplant, even if I didn't know them personally, but at the same time I should perhaps be more aware about how open my blog really was.  

Life has been fairly quiet in recent weeks, January always seeming a rather long month.   Today was sadly my great Aunt Nancy's funeral.  I couldn't get away from work but was able to attend the service last night receiving the body into the Church.   Aunty Nancy was quite a character and led a busy and varied life!  When I think of her, the word Bingo! springs to mind - one of her favourite past times hehe.  I am thinking of Faye and Catherine at this time and hoping the happy memories are keeping them strong xx

Andrews gran has also been quite unwell over the last week and is spending most of her time in bed (in the nursing home) now.  She is comfortable and settled though, so that is all we can ask for.

Andrew has been really busy with work and was down in Salsbury for a few days last week, leaving me and little Seb to fend for ourselves.  We managed quite well (and the house stayed very tidy!) but we are glad to have him back.  

I am going down to Southampton on Friday for the day - to speak at an area CF meeting.   They have invited me to come and speak about CF and Body Image as they have found the booklets really helpful!  I have prepared slides based on the booklet but having never actually spoken on the topic, I am quite nervous!  It will be an exhausting day as I am getting a 6.45am flight and flying back that evening.  Better doing that and being in my own bed though :-)  The rest of the weekend should be quiet though so I can catch up on my snoozing.

I will leave you with some cute pics for Seb on a recent walk...

Seb sees an Alsation he knows and bombs off to see her!  

Seb away out on front - doesn't really like to walk 'with' me!

I was thinking Seb could maybe be their mascot?

Testing Log in!

Thank you to those who have sent me their email addresses for the new blog log in - I am collecting these and will send people details on how to log in once I make the change.  I know it's a bit of a pain all round having to log in, but I think better in the long run it will allow me to keep blogging safely!

I hope none of my readers feel they can't contact me to get added - I am happy for anyone to continue reading who has found it helpful so please do get in touch :-)  weejacblog@gmail.com.

While I am here, I will just post a link to my friends lovely little girl Georgia - she is getting her long hair cut and donating this to a charity who makes wigs for children with cancer.

Georgia's Page

Changing to sign in...

I am thinking of setting my blog to private where you need to sign in to view - so that family, friends, work friends, CF/transplant people can read it but it's not just open on public internet. 

Just been wondering recently that if a patient comes across the blog would I really want them to read my life story so openly and I think it being open makes me feel restricted in what I can say.

So if you would like to keep access then just send me your email and I will add this to the allowed list :-)   It doesn't matter if I don't know you well (mum and dads friends, Uncle Hugh's parishioners, friends of friends etc) - just drop me a line and I can add you no problem.  I'm not trying to make it very selective but just trying to be sensible about what I broadcast to the world!    You can contact me at weejacblog@gmail.com with your email to add.

I am leaving it open for a little while so people can get this message before I change it!