Thank you for all the lovely supportive comments on my last blog entry - it really helps to know that my friends and family are there for me during both the highs and lows. You will be pleased to read that this entry will be a 'high', although this is largely due to the Chocolate Brownie Sundae containing 38.9g of sugar (approx 8 tsps) I have just consumed. Sugaaaar Rush!
Yes, I am trying to put some weight on again, and this time I used the method of adding lots of random deserts to my online Tesco order based purely on total number of calories. The chocolate brownie sundae has an amazing 780 calories in one serving so that was first in the basket. I don't even like sundaes but with that many calories I figured if I could even eat half it would be a roaring success. I suggested to Andrew that he could help me eat it, as it did really look rather daunting with all its chocolate mousse, brownie pieces and fresh cream. Funnily enough he agreed to help with little persuasion. Between us we managed to tackle the beast and polished off the 780 calorie, 165% of daily recommended saturated fat dessert. The initial glory of a job well done soon gave way to us both lying on the sofa feeling rather queasy and all together not very well. It's rather fortuitous I added that bottle of Gaviscon to the shopping list then.
I have been getting out quite often with the portable oxygen. Unfortunately I have found the cylinders too heavy to carry myself, so either Andrew or mum has to come along as professional oxygen cylinder carriers. This does take a little practice however, as clearly my tubing is connected to the cylinder, so I am therefore connected to the other person. A strange shuffling dance ensues whereby we slowly move around the shop (or where ever) with me intermittently shouting directions "left ahead" "over to that shelf" "Stop here" "Ahhhhhh" (thats me being pulled by the nasal oxygen specs when the other person walks in different direction). All good fun though. Hopefully things will get a bit easier (in fact I thought today I wasn't quite as breathless) because I would like to get out to the shops on my own again and be able to walk around a bit more freely. Always good to have a goal to aim for - and if all else fails I am trying to build up some arm muscles so I can maybe carry the cylinder myself.
I have been signed off work for another couple of months, and then I will take it from there. At the moment I would not have the energy to manage at work, and to be honest I was struggling significantly for quite some time before this. Whether I do get back to work before my transplant looks doubtful, but nothing is impossible. I will just concentrate on the eating, exercising and such like for the next couple of months and see where I am at the end. Fortunately I am not yet bored (mostly because mum is keeping me busy by making sure I get out of the house and don't become a recluse) but I have a few ideas for things to keep me occupied should my brain begin to wilt.
Seb is at least pleased to have me around most of the time, or at least I think he is. He likes to act a bit casual about these things. He prefers hanging out with Andrew at the moment because he is digging in the garden (creating a rockery) which is far more interesting. Seb follows behind, poking his nose into each new hole dug and generally making a nuisance of himself. If all else fails he likes to run off with a gardening glove or anything else he can find lying around. Mum was trying to hang washing out today and stopped to talk to my neighbour. When she turned back the peg bag had disappeared, although there was a small trail of coloured pegs leading to the culprit. He hasn't yet worked out the concept of covering his tracks, although I suspect its only a matter of time.
Butter wouldn't melt...
7 comments:
Glad to hear you having a good day lovely and my god with over 700 calories per desert you will be putting on weight in no time! xxx
lol at the trail of pegs. What a strange wee dog you have ;)
I like the sound of that desert; thats 2 calshakes I wouldn't need to drink...
Keep it up, hope your lack of internet access hasn't proved too damaging.
I'l have to give you 'Billy' the pram from my 'no balance whatsoever' days. You can put the cylinder in that. I've thought it through. OR get a posh shopping trolley and pretend it is for Seb to ride round in as he disguises the cylinder, a bit like the 'it' girls who put dogs in handbags. It could catch on.
Or else I can just shut up and say I'm glad that you can get about more. I bet Seb is chuffed.
Love
Jayne xxx
Just catching up with your last 2 blogs. I don't do postings or indeed any other interactive internet stuff but felt moved to let you know that aside from the people you know about, there are others (like me) who are reading your blogs and keeping you close in thought, albeit in a very non-communicative and (usually) very private way!
I know how clever, incisive and talented you are and whether housebound or tethered to a portable oxygen cylinder, you still manage to contribute, illuminate and inspire.
Fond regards to you and to your mum & dad.
Linda H
ex-PDU, Pentland
Hi Jac,
The house move is just around the corner and I would still love a painting, so if you need stuff to do, and you are feeling up to it - maybe you could do one for me?
Make the most of not going to work and look after yourself. Anything with the word 'pie', frequent trips to the bakers, and bacon and peanut butter sandwiches are my recommendation for getting tubby. And surely you can get some deep fried mars bars in your local chippie ;-)
Audrey xx
I came back to comment on the new pics down the side. I love the windswept Seb. I've said it before but I swear I've never seen a dog look so wise.
I hope your weekend is good.
I gor up too early and Minnie is giving me evils.
xxx
Audrey,
Just send me a wee email about the painting and I'll see what I can do :-)
Jac x
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