Up The Farway Tree

Back on the List

I had my bloods checked today again and the results were a little confusing. My white cell count (WCC), which indicates infection, had risen since Monday (from 22 to 29 for any medical people), but my CRP, which reflects acute infection and inflammation, had fallen significantly (from 125 to 36). To confuse things further, I was started on a course of steroids on Monday, which can artificially raise your white cell count, which probably explains the conflicting results.

I have spoken to the transplant coordinator, who agreed that the WCC was probably higher because of the steroids, and also they will take into account the fact that my WCC is almost permanently raised anyway, due to chronic infection. She was reassured by the fact my temperature had settled and I am otherwise improving on the IV's. So the upshot is that should some suitable lungs become available in the immediate future, I would at least be considered and the transplant team would assess me themselves to check I was fit enough for surgery. That's as good an outcome as I could hope for :-)

Apart from a couple of hospital visits, I did have quite a good birthday week and managed to spend all my birthday money in about the space of an hour. We took the wheelchair on a wee trip to the shops for a couple of hours, and I bought some new tops and an umbrella with pink flamingoes. Andrew says he won't be carrying it for me under any circumstances. Sadly however the birthday week has come to its end and mum made me take all my cards down today. I am still refusing however to take down the (now wrinkled) helium balloons I was sent in the hospital. I think there's still a good week left in them yet..

Wee Seb is being shipped off to his Granny's again this weekend, as we are going to a friends wedding. It's a whole weekend of celebrations with a BBQ on the Friday, wedding on the Saturday and lunch on Sunday. I'm hoping I will be feeling ok, but since we are staying at the hotel I can at least have a rest whenever needed and will be taking my oxygen concentrator to have in the room with me. I am really looking forward to the weekend, especially since there will lots of friends there that I haven't seen for ages. I think a good catch up with friends could be just what the doctor ordered.