Today has been a better day, both emotionally and physically. The pain has been much better and although I was sore this morning it has been better this afternoon, which made moving around so much easier. Less pain makes for a happier Jac. I also had a much better nights sleep which I hope will continue tonight. Fingers crossed!
I spoke with the doctor again today about the C. Difficile infection. As I remain symptom free, they are assuming that this infection was pre-transplant and has been treated by the antibiotic regime I was given post transplant (positive test results can remain for a while after treatment). After a 48 hr period of no symptoms you are given the all clear, so this means that I was still able to attend the gym today and hopefully will be able to continue this next week. I did much the same regime today - bike, leg weights, bicep curls and treadmill. I did alter the speed on the treadmill when the physio wasn't looking, just 'to see' what happened. It made me quite breathless, but in a totally different way than before. I have become so unfit over the past couple of years, that there is still a long way to go, but I am sure that I will be able to enjoy these lungs so much more as I regain some of that fitness. Once I am home Seb will become my main exercise, which is great because I am motivated to take him out for walks. I did this for as long as I could pre-transplant and even at times when I really wasn't fit to. His wee face and excited tail wag when you say 'walkies' is motivation enough for anyone.
Seb's face when told his mummy was away getting her transplant...
Seb a few hours later...clearly worried sick
Continuing on my good trend mum and I went for a short walk this afternoon in the hospital grounds. We didn't go far, but were able to sit out and enjoy the sunshine for a while, which does wonders for the cabin fever you get being stuck in a hospital room. Andrew had the day off to catch up with some work he has been doing over the past few days, so hopefully he will have made some more progress with that. I think he has also been allocated a room mate for his hospital flat, so not sure how he is feeling about that. Not so much privacy and no doubt will be a little awkward, but they really are limited for space in the flats, as they have done quite a few transplants recently, which is good to hear.
With regards getting home, the doctor wants to see how I am over the weekend with pain control, and all going well I might then move to the hospital flats for a few days next week before heading back home. Having now moved from the comfort of HDU and being back to the reality of a large busy ward situation, I think I will definitely be ready to move on in the next few days. The weekend will be quieter, with no gym sessions running, but I did ask the physio to get me an exercise bike so I can continue with that. She has left me an exercise sheet to follow, so I have no excuses for slacking now!
I also had a visit from the catholic deacon today. He has been in a couple of times to see me, the last time being a week ago, so he was stunned by the difference. I suppose I find it hard to see because I am seeing small changes day to day, but he saw a huge improvement since his last visit which was really encouraging to hear. He also said that I talk a lot, but you all know that is simply not true.
Would also like to say another thank you for the cards I have received - it's like my birthday every day! I reckon I can put them all up at home for at least the 12 week recuperation period. I don't think that would be too long...
13 comments:
Great news what a star you are. It feels so good to share your days even better when they have been good ones. Bet seb cannot wait for the "walkies call" Looking forward to tomorrows update. Big hugs Rose and Kevin xxxxxxx
Hey! Glad to hear you are feeling a bit better today and that the pain has eased a bit - there are bound to be loads of up and downs over the next wee while but please remember we're here to celebrate the ups with you and support you through the downs! :)
So glad to hear you can still use the gym - can just imagine you going hell for leather on the treadmill behind the physio's back lol :) - always up to some sort of mischief (i'm just glad that it's never rubbed off on me!!!)
Can't believe the deacon said you talk a lot - what's that all about?!?! Say hi to Andrew - hope he gets on well with his roomie!
lots and lots of love and huggles xxx
ps how cute is wee seb?! he'll be sooooo pleased when you both get home!
Just spent ages typing a message, only to be disallowed to post it, if thats a word. it said something like: Glad Bec is doing her job and keeping you on track, as we don't want you going off on a tangent. Also, that you do talk a lot. And that I'm very glad I don't have to replumb my house. I'll reply to your email tomorrow so you have seomthing scintillating to read over the weekend. much love
xxFi
hello!
glad your feeling a bit better today.
You made me giggle with your antics on the treadmill, I can just see you jabbing quickly at the buttons as soon as the physio turned his/her back!
Here's hoping you get your homecoming visit soon, I can't wait to see you and observe the difference for myself (I say observe as I clearly won't be able to comment with the rate you seem to be talking at these days! :) )
Keep up the hard work, your amazing!
Lots of love and huggles!
Sarah xxxxxxxx
Hi Jac,
Great to hear you had a better day today and hope you get another good sleep tonight.
There's an old photo (I think maybe even taken on the Geography Benmore field trip) of you trying to jib Claire with a pool cue - I imagine you to have the same mischievous look on your face when changing the treadmill settings behind the physio's back!
Love & hugs, Jennifer xx
PS - can't believe my Mum & Claire are using your blog to argue about technology skills- they should be ashamed! ;)
Hi Jac
I'm so glad today was a better day. Please tell mum that your cards must stay up for a min of 12 weeks. ;-)
I can see that Seb is super stressed that mummy is away.
Take care.
Love Jax and Barney xxx
Hi Jac,
Glad you had a better day today and that your sleep is improving. Fab news about the c diff too! Great stuff about the gym. At this rate poor Seb will be exhausted with all those walks when you get home :-)
Fantastic that you're feeling ready to move on - you'll be home in no time at this rate. I'll have to start practising getting a word in edgeways for when I see you! If I can see you from behind your card display that is ;-)
Anyway, hope you have another good sleep tonight and looking forward to hearing from you again soon.
Lots of love,
Lee & Ali
xx
I love the look in Seb's eyes in the first picture - it looks like he's giving a sideways suspicious look..."oh yeah, a transplant you say? You mean she's gone shopping AGAIN?!"
In the second picture he is clearly exhausted from all the worrying about you ;o)
xxxxxxxxxxxxxx
Delighted you have had a much better day today . You are making me feel sluggish with all the exercise you are having. Seb will have his work cut out keeping up with you.Loved his pics - he is quite the "actor" .Spoke to Mum tonight - was happy that she gave the pie & peas a miss (been with her when she's had the peas before) not pleasant I can tell you.Oops!! I forgot other folk read this . Anyway onwards & upwards to tomorrow and another good day
Love you loads Carol Ann & Bobby XX
Hi Jacqueline, So glad you have had such a good day. you will soon get used to your new comfort zone. Seb was so excited when I told him about all the " WALKIES" he was going to have when you get home!! Let's hope Andrew's new flat mate doesnt look like Kylie Minogue!!! I don't suppose he will be complaining then!!It will be a bit awkward if you move in as well!! Very cosy!! Hope you have another great day tomorrow. Look forward to your blog it's the best part of the day. Lots of love to you both love Anne, John, Ross and Wee Seb xxxxxxxxxxx
Hey You!
It looks like you're on the right road! Hope the c-diff turns into nothing... I hope you continue improving and any pain lessens...
Just wait a couple of months until all of these little bumps are out of the way and you're using those beautiful, new lungs they way they are meant to be used!!! Sleeping and other things like that can be a bit of a problem for even a few months -- but the breathin' stuff is freakin' awesome...
I'm a CFer like you -- quite a bit older than you though... I managed to make it almost to my 40th birthday before I received my beautiful, new lungs... That was a little over 8 years ago... I hope your ride in life is as wonderful as mine has been -- in fact, I hope it's more wonderful... And it's going to be pretty difficult to actually BE more wonderful...
I have a website that has some of my story, and I also use as a tribute to my donor -- it's at www.ClimbingForKari.org and I also blog about organ donation at www.ReviveHope.com
I hope they spring you from the hospital soon -- sounds like you're about ready!!! It's always a little nerve wracking going home -- but it sounds like you'll be getting quite a bit of exercise with Seb!!!
You take care, Jac -- I'm proud of you for all you've been doing, and getting through all you've been through...
Love,
Steve
Steve Ferkau
Chicago, IL USA
Hi Wee Seb here again!
I quite like this blog thing (I have a talent for this do I not?) What next? A wee novel? I can just see the title now 'The Diary of a Highly Intelligent, Sensitive Super Pooch - The Trials and Tribulations' (or is that a bit of a mouthful?)
Granny A said it would fly off the shelves as the shops are full of sob stories about traumatised children but so far no traumatised pooches (sound!!) She said that with a bit of 'poetic licence' (what's that??) we could make a wee fortune. I'm not sure about this 'we' stuff but we might strike a deal (that's where Papa J might come in useful!!)
Anyway, I digress. I am still being a good boy (2 weeks now but hey who's counting!) I promise not to go on Uncle Ross's window sill again (Got a right row from Granny T about that one! What a nag! I was only being honest!) A pooch needs a bit of reckless abandon every now and again! We have had fab weather here and I've been gardening with Papa J. Well, he's been gardening, I've been sunbathing! Happy days! That Factor 30 is good stuff. I'm a bit sticky though!
Another weekend looms - but joy - pocket-money day again today! What to buy? What to buy? Such a dilemma for a wee pooch! I will just have to shop till I drop (or they drop!!)
You are doing amazingly well mummy. What fun we are going to have! Walkies! Walkies! But be gentle with me. I am a delicate wee soul. Oh by the way I did my 'sore paw' act with Papa J yesterday when we were out walkies. Granny T did warn me about his 'wee walks' mind you. Well, we were on our usual '20 mile hike' when I thought that's it - enough is enough! So, I started to limp badly. Papa J of course panicked, picked me up and said 'Oh we'd better go home' (sound!!) Thing is I forget to limp on the way home so that left him puzzled for the rest of the day!! Can't use that trick too often though, he's bound to twig on! Good eh! Who's a clever wee pooch!!
Big licks to daddy
Lots of Love
Wee Seb
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Tried to post a response three times yesterday and in the end gave up before frustration made me bite my computer (stupid Blogger...)
awesome update lovely! Made me grin from ear to ear that did.
Loving the photos of Seb, firstly with his pout and then managing very bravely to forget about it.
A much shorter post from me today I think (plus I am dubious about blogger even letting me put it up) so keep on mending lovely one! massive higs xx
ps - not sure now whether I log on to read yours or sebs posts... ;)
pps - I caved and bought a pair of shoes. Doh! But they were work shoes!
x
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