Sunday, May 11, 2008

An Interlude

Although Andrew has blogged from the start of this journey, I have lots of thoughts swirling around my head from the moment I got the call, my time in ITU and early on in HDU before I had access to my blog again. I've decided to write down some of these memories - apologies if this seems like I am going backwards, but I feel it would help me to share some of these thoughts - better written down than in floating in my head. Tonight I will tell you about the moment I got the call...

I woke from a deep sleep to the sound of the phone ringing. I glanced at the clock - 3.45am - I knew immediately who was calling. I stumbled out of bed, desperately trying to disconnect my feeding tube and untangle the oxygen, all the time saying "Andrew, Andrew..the phone is ringing". Silence. I finally got myself free and ran to the study, but as I picked up the phone it rang off. I tried to redial the number but at the same time my mobile started ringing in my bedroom - Dolly Partons 'Working 9-5" cheerfully indicated an incoming call and this time I got to the phone in time. It was one of the coordinators from Newcastle and she wanted to check how I was since I started the IV antibiotics. I was able to reassure her that I was much better, and in fact, my chest was probably about as good as it gets these days. Happy with this response she said that some lungs were potentially available and she would call and find out if the air ambulance was available. By this time Andrew had woken up and was sitting there somewhat confused and not quite grasping the fact I had just received 'the call'. I was very calm this time, although understandably nervous after my previous experience. I quickly got dressed and packed last minute items (I had list made up). As I moved around downstairs Seb wandered through with his eyes half shut, decided I wasn't doing anything particularly interesting and went back to his bed. The phone rang again and this time it was ambulance control to say they would be there shortly to take me to the airport. I calmly phoned mum to let her know and then in a moment of clarity remembered to cancel my online Tesco order which was due to arrive the following day.

The journey down in the plane was amazing, as the sun began to rise over Newcastle. Andrew captured a few photos with his mobile and it seemed somehow poignant - the sense of a new beginning.

On arrival at Freemans, sometime before 6am, it was the same routine as before - xray, bloods, examination - and then the dreaded wait. This time they were going to make sure the lungs were in a box and on their way before i was even anaesthetised...there couldn't be a repeat of last time.

We had only been waiting a couple of hours before mum and dad arrived - mum prepared this time with snacks and drinks for everyone, apart from me who was fasting in preparation. The coordinator was reluctant to get our hopes up but the initial tests looked good. I sent a couple of text messages, but I didn't phone anyone - I was fearful that this would be yet another false alarm and we would soon be on our way home again. I did however prepare a text message in case I was taken to theatre and was adding peoples names to the list, so that Andrew could send it once I had gone. He repeatedly told me this was a dangerous thing to do, as I might accidentally send it. Which I did. I then had to explain to a few confused friends that I hadn't actually gone to theatre yet but was in fact still waiting. Oh how we laughed, even though it wasn't really funny. Strange how humour becomes so black at these times.

At around 10am they took me to the anaesthestic room to get prepared, but were holding off on actually putting me to sleep until the lungs were on their way. It seemed so much more intense this time because I had much longer to wait on my own but at least I knew what to expect. I clearly remember the lines being placed and monitors attached, and the anaesthetists merrily chatting about how her brother in law lived near me. Funny the things you remember. My port was accessed due to being on IVs, so they were able to use this line to give the drugs. I slipped into sleep. The surgery took around 7 hours but I was kept asleep for around 24 hours, before I woke in ITU to the sounds of monitors beeping and alarms sounding, and to mum and Andrew standing there beside me telling me I HAD received the transplant.

7 comments:

Anonymous said...

Thanks for this Jac...very useful for me, as I can see what it feels like from when you get that call....to actually waking up in ICU! You should be so proud of your progress and I cant wait to see how this continues.
Thank you also for the comment that you left on my blog,it was really kind of you after you have just had your new set of lungs. It is nice to get comments from someone who has gone through your fears and can put your mind at ease.
Ciproxin is not the culprit....lol I am going to look through every pill I have tonight.... as I am still covered in a rash, and still itching like mad. Watch this space!
Lynn x x

Anonymous said...

Dolly Parton's 9-5 will have a new meaning or us all. Rose and Kevin and hugs xxxxxx

Anonymous said...

Thank s for sharing your experience with us - I know that I was awakened at 6.30 with a very excited Therine announcing she was on her way to Newcastle - You have had such a roller coaster 3 weeks -its seems much longer- Dolly Parton will have a big effect on us all from now on - Glad Anne &John have been down to see you & Seb had a lovely time I.m sure he wont give you the cold shoulder for long once he realises you are all home together again . Hope you get the niggley pain sorted out tomorrow & have a good nights sleep (Auntie Agnes hasn't slept since 1949) Love you loads
Carol Ann & Bobby xx

Anonymous said...

Hi,Jacqueline, what a super blog comment. We can only imagine how you all felt But we keep going over and over that day! Fantastic insight into your journey. Keep it up. Theres a book there I'm sure. I know how Aunty Agnes feels as I haven't slept since 1951 !!!{This is Anne by the way!!] You will have helped so many CF patients with this and the rest of us too!! Have another great day. Look forward to tonight's blog. Take care.
Lots of love Anne John Ross and wee Seb
xxxxxxxx

Alice Vogt said...

I get tears in my eyes reading this! Quite simmilar to my experience! Although I was kept sedated for 4 days, as I was struggling with the vent, kept trying to pull it out, so they had to tie down my hands and increase sedation. I got the call at 11:40pm, wasn't asleep yet!

Anonymous said...

xA wonderful insight into your remarkable journey. I can't begin to imagine what you have been through. It's great to talk to James on one of his flying visits back to Bathgate.
Hope you get home soon and then life can really begin.

Karen xxxxx

Seb is obviously taking everything in his stride.

Anonymous said...

Hey, it's really good to read your blog and probably a good idea to write it all down so you don't have to keep going over and over it when you see all yours fans! :) I caused havoc by sending the 'mistake' text to my mum, Jen and the girls then texting back wee while later trying to explain! I was quite amused too and could imagine you having a wee giggle - you're right, comedy moments happen at the weirdest times! Love you millions from me xxxxxxxxxxx