Tx Update - Day 7 - Thursday 11pm
Today was busy and a lot of physical progress was made. Although still on a lot of pain meds having the chest drains out has made a huge difference.
The day started with the physio getting her onto an exercise bike for 3 minutes along with the usual arm and leg exercises. They will gradually keep increasing her level of exercise over the coming week.
Jac then insisted on having a shower since a week without washing her hair was really starting to bother her! This was a large and complex operation involving a nurse and her mum and not a great deal of privacy. She felt (and looked) so much better for it.
This afternoon was also busy with a trip to x-ray, there is still a small pleural effusion (fluid in the space around the lungs). The doctors don't seem too concerned as this is quite common. They will keep monitoring it as they do daily x-rays anyway. This was followed by a trip to lung function and despite the pain managed to blow 40% of normal lung volume!! That is double what her lung function was before the surgery and they would expect this to keep steadily improving over the next few months. She found this very reassuring because she has been finding breathing quite difficult (probably due to pain and having to relearn how to breathe with normal lungs).
Tomorrow will be another big day, she is getting her first routine bronch with a biopsy to look for any evidence of rejection or any other problems. This is her first major milestone post-transplant so fingers crossed that all goes well.
After such a busy day she is feeling overwhelmed emotionally by the whole experience. Hopefully she can get a good nights sleep before tomorrows activities begin.
Andrew
16 comments:
Hi
Great to see Jac on a bike!
We hope tomorrow goes well and we will be waiting to hear good news!
Lots of Love to both of you
Mum, Dad, Ross & Seb
xxxxxxx
Thanks Andrew, great news about the lung function, we are routing for her that the tests go well tomorrow. She is doing amazing. Love and prayers from us all. Rose and Kevin xxxx
Hi Jac and Andrew
You're doing so well - you're putting me to shame with your exercise bike! Keep strong and remember we're all thinking of you and behind you 100% - looking forward to tomorrow's blog update already!
Love you millions, Claire and Giuseppe xxx
Great to hear the progress Jac is making. 40% lung function is amazing no doubt she will go from strength to strength.Fingers crosed everything will go alright tomorrow. Nice to see James although he had to compete and endure the Rantings of Bobby the "Hun"
Luv you loads
Carol Ann & Bobby
Reading your blog from home. So proud of your determination - must have got that from me ( you know where you got your brains)
See you soon
love Dad
Well done Jac you are doing great.
Sending you lots of love
Elaine xx
Hey Jac,
I've always followed your blog but never posted! I am just so excited for you, I could burst! I love you loads and can't wait to see you. Thanks Andrew for all the updates and Aunt T...dancing round the room???
Lots of love and hugs to everyone!
Jen xxxxxxxxxxxxxxxxxxxxxxxxx
Wow! You're putting us to shame on that bike Jac! Well done you!
What a truly amazing week you've had. We hope everything goes well tomorrow and will be thinking of you.
Lots of love
Lee & Ali
xx
Oh Jac, what a great update !! (Andrew too )
:0)
xx
Heya Jac, go you on the bike! I always seem to be talking about myself when I comment here but it's just to reassure you as your recovery sounds a bit like mine was. I woke up thinking I'd be able to breathe magically and that just wasn't the case. I began thinking something was wrong but like you, my pfts were up to 40 and I was relieved/delighted.
On the food thingy, If they stick you on high sterodids, you'll spend the day with your head stuck in a fridge (looking for food...not just randomly/coincidentaly in a fridge..). You're doing fantastically well, so keep it up! Here's to a brilliant weekend. Hope you all have a restful and good one. Hugs always rosie xxx
From Shelleys dad.
Great photo. Go Jac - you are doing fantastically well. Reading Andrews posts is just like reading the ones I posted about Shelley.
Everything Andrew posts could have been me talking about her. Think you must be trying to beat her 18 days in there. Keep it up. Delighted for you.
Jim
wowowowow! Awesome pic as well. Glad she is somewhat reassured by the lung function result (took me months to get that high - you go Ms Jac!!) Tell her I reminded her it will feel hard to breathe as your chest has been cut open and sewn up again!
Andrew - make sure you get some rest too and I hope you are smiling with this amazing recovery she is demonstrating so far.
Keep going guys! :) xx
Brilliant! You'll by cycling back to Scotland before too long at this rate!
Jennifer x
At this rate you will be able to run the marathon with me. I will check to see if there are any places left.
Hey Jac,
'Anyone for a game of hidey?' Remember those days?
My Mum and Dad have been keeping me posted on your progress!
I did some major praying for you in Lourdes this year....
Your blog has certainly made me smile today! I hope that my smile gets bigger every day while reading about your amazing progress!
Love
Stephen L x
PS. Claire loves the physio uniforms they wear at the hospital you are in - beats the tunics they have to wear here!
Hey Jac
Fab to see you on the bike, lovin the sexy pj's, i'm just as bad with my sexy gown that has no back so apologies to all the staff at the Freeman's hehe, your lookin fab cyclin away there, hope your bronch went ok today - i'm just shattered now so will be glad of a wee snooze, will give you a wee txt as soon as i have a charge in my phone, keep it up hun, your doin a grand job.
Love Shelbert xxx
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