Friday, May 02, 2008

Tx Update - Day 8 - Friday 10:30pm

Some good news today, Jac's bronchoscopy biopsy result came back with absolutely no signs of rejection! This gives her a great start along the difficult journey towards recovery.

They woke her at 6:30 this morning to start preparing her for the procedure, getting washed and changed back into a hospital gown. She didn't go down until 10:45 though, so we were sitting about waiting for most of the morning. The bronchoscopy itself (which is a small camera used to look at the lungs) took about 45 minutes and involved her being given sedation which makes her a bit woozy and unable to remember anything of the procedure. Much like having a few too many drinks would and it even leaves you with a hangover!

She was pretty sleepy for the rest of the afternoon and didn't really come round until late afternoon. She got another x-ray then, which again was fine.

Now that she has passed that first milestone she is able to begin going to the gym next week to start some more intensive rehab. The physio explained that her muscles will now give up before her lungs,so these need to be gradually built up as she slowly gets stronger.

Although most people expect that she just woke up and could breathe properly for the first time in years, it has not quite been like that. For most of the week she had felt just as breathless as previously and was really scared to trust that these new lungs would work. There are lots of new sensations to get used to and she feels that being able to breathe more deeply is a strange and often frightening experience. She is however now just starting to see the differences, such as the fact she can talk for longer without becoming breathless. Lucky us! She also understandably still feels apprehensive about the journey ahead and is just taking one day at a time at the moment. She just wanted me to explain this to everyone, so they can understand a little more of the emtional side of the journey, although I'm sure she will explain much more when she is back online herself.

Andrew

N.B Jac has been told that mobile phones cannot be used on the ward, so if she hasn't replied to any messages that is the reason. She is getting to read the comments here though and is really encouraged by them.

P.S. Jac actually wrote most of this!!

17 comments:

Anonymous said...

Hi Andrew & Jac,

Great to hear that everything is still going so well.

What you've been through is huge and it's no wonder that you've found it scary.

Now that you've started noticing the difference there will be no stopping you, I'm sure!

Lots of love & hugs

Jennifer xx

Anonymous said...

From Shelleys dad
Well done Jac. You are doing great , and just like Shelley, she too was scared as she didn't feel a difference in the first week either, and just like you was scared to use them. What is amazing is that day by day your progress is identical to Shelley's.
Keep it up and you will be home before you know it, and out for the long walks, without even feeling breathless.
Your legs will feel it though lol.
Oh and my wife says to say she thoroughly enjoyed the coffee with your mum today.
Andrew - give it a few days and you wont get a word in if she is anything like Shelley. Once she found out she could talk, without getting breathless, she never shut up.The one way conversations start now. Hope you are a good listener. lol
Jim

Anonymous said...

Hi

Great news again. We're so proud of all that you are achieving no matter how difficult it must be for you.
That's a whole week now and what a week it's been. One day at a time that's the way to go!
Look forward to another day tomorrow.


Lots of love

Anne, John, Ross & Seb

Anonymous said...

Hi
Wee Seb here.
Fantastic news today Mummy. Of course Granny A headed straight for the champagne and had the audacity to use you as an excuse (champagne no less! She likes a drink does that one! It hardly touched the side of the glass. All I got was a measly doggy treat). Never mind, at this rate you will be home with your beloved pooch (that’s me by the way!) in next to no time. Must go as it’s way past my bedtime and I was allowed to stay up late to do this.

Lots and lots of licks TO you and Daddy

Wee Seb
xxxxxxxxx

Anonymous said...

Hey Jamsy, So pleased everything is going so well. You'll soon be able to compete against your mum in the talking department.....can't decide if that is good or bad???? Anyway thinking of you loads. lots of love and hugs. xx

Anonymous said...

Hey just a wee post to say that I'm so pleased that the bronchoscopy results were excellent today :) you're doing a great job! It's unbelievable what you've achieved so far especially considering the emotional hurdles you are overcoming too - I'm so so proud of you and sending lots of love and huggles!

Lots of love from Claire

PS Giuseppe is already wondering how long we'll be chatting for once you get home now that there's no stopping you. Ha ha - he's not seen anything yet! lol :)

It's Her said...

Great news, keep going xx

Tinypoppet said...

So she's bossing you around and telling everyone what to do and expect....

Sounds like Jac is on her way back ;)

She's absolutely right though, the emotional side of the journey can be vastly underestimated, it will take time to get used to all this and for the lungs to "settle in" and start working but she is most definitely heading in the right direction. YAY!

higs xx

Jayne said...

Brilliant Jac !!

I'm so pleased that things are going in the right direction. Thinking of you lots.

I'm almost as excited to get an update from Seb. My dog isn't as clever as that. She is such a let down.

Lots of love

xxxx

Anonymous said...

Hi Jac
How you doin doll? After me saying yesterday i would txt you l8r in the day my mum's phone ran out of charge after i txt you and we don't have her charger here so apologies for that. Was just reading about your phone so thought i'd leave a wee msg here. Was really chuffed to read you have no rejection and your bronch went well, don't know about you but i find the bronch's here much easier and their over in no time. Lovin your wee msgs from Seb ha! so cute. Great to read everyday is progressin well, you looking forward to the gym? Will be in touch soon doll, give my best to your mum and Andrew love Shelbert xxx

Anonymous said...

Hi Jac and Andrew,

Following your progress with great interest, great to see you on the bike. Very impressed with Andrew's medical knowledge. You are so brave, and we think about you every day.

Lots of love

Karen, Robin, Craig and Jennifer
xxxx

Anonymous said...

Hi Jac,

Fantastic news about the results! So glad things are going well. You're bound to be feeling up and down just now - what you've been through is incredibly emotionally intense. You've come so far though and I'm sure soon there will be more ups than downs :)

Lots of love,

Lee & Ali
xx

Anonymous said...

Joseph here, glad to hear all is progressing well, really enjoying the blog and Sarah's shown me the other one's out there too, AMAZING, my arm chair knowledge of what you guys go through hasn't really prepared me for the blogs insights. It's great reading, humbling and inspirational. I'm now hopelessly addicted.

Wishing you well!

Love Joseph

xxx

Anonymous said...

I've not actually had a transplant as you know Jac, but I know lots of people who have and all of them have found it tough recovering. There is an assumption that you have a transplant, wake up, can breathe fantastically and feel over the moon. When in actual fact its a very hard time physically and emotionally. Your in pain, everything feels weird, you don't trust the new lungs, you think something is going wrong all the time, you are often drugged up on painkillers with unpleasant psychological side-effects, and lots of people actually think "Is this it? This isn't great! Stop telling me how wonderful it all is and how amazingly I'm doing!" Then they feel guilty for feeling like that as they think they should be happy and grateful and so on and so forth.

So I can imagine that things so feel all shiny and sparkly and amazing right now and that's perfectly normal. Recovering from surgery that it termed "equivalent to a major car crash" is not easy and it will take time.

But once you are over these first few weeks, things will get better and before long you will be flying and not looking back. Thinking of you all very much and hoping you feel better soon xxxx

Anonymous said...

Sorry that sentence should have read:

"So I can imagine that things don't feel all shiny and sparkly and amazing right now"

xxx

Anonymous said...

Glad to hear the bronch went well great news . I think that we will be entering her in the Tour De France wih all the cycling she is doing .
Auntie Agnes sitting beside me while I write this she says "Keep up the good work so as you will be showing That Andrew a thing or two about running & cycling love & God Bless you both" Everyone asking at Mass tonight how things are progressing . I feel like the Courier Love you loads Carol Ann & Bobby xx

Alice Vogt said...

I also didn't feel a difference in the beginning!!! I think it's the pain and your chest feels tight because of the wound...