Up The Farway Tree

My energy levels have been a bit better over the last couple of days - probably helped by not drinking coffee after dinner, which always stops me getting to sleep at a normal hour. You would think I would have learnt by now. I have been up bright and early the past few mornings and am really not sure what to do with all this extra time! Mum is still coming through most days to keep me out of trouble and help with all the housework that I am not allowed to do just now (shame). It will be easier when I am allowed into crowded places though, because then we can get out and about a bit more. I've had a friend over yesterday and it was so good to catch up and not worry about getting breathless or tired and be able to just relax and enjoy the chat. I think I could get used to a life of lunching and meeting for coffee :-)

The peg tube removal has continued to be a great success and I have had no problems at all since I took it out. Unfortunately my weight still appears to be drifting downwards, so some hard action may be required. I asked the GP to prescribe me some high calories drinks which I will try and take every day and have set myself the deadline of my next clinic appointment (2 1/2 weeks away) to put on some weight. If I haven't by then I will probably resort to the overnight NG feeding for a while because I really can't afford to let things slide at this stage. I have however still been baking quite a lot, and did manage to devour an entire tray of flapjacks over 2 days. They were rather good if I do say so myself :-) The blood sugars are still a bit random but this will settle as my dose of steroids comes down in the next few weeks, so I'm sure this will also help with the weight gain.

The good news is that my foot is a bit better, although it still quite sore to walk on. My mums friend is a physio (hello Irene!) and has given me some advice and exercises I can do, so hopefully that will settle down soon. I am just taking Seb for two shorter walks a day so that I don't put too much strain on it. Seb appears very happy with this arrangement, and in fact was so tired last night he refused to go out with Andrew. Fussy wee thing.

Otherwise, I seem to be getting on really well and gradually building up my stamina. I did give myself a fright this morning when I checked my temperature (which I have to do twice daily) and found it significantly raised, which is a warning sign of infection or rejection. I then realised that I had just finished my coffee and my mouth was still hot! I double checked with the good old fashioned underarm mercury thermometer and my temperature was absolutely fine. What a dafty.

Well my friend is coming over for lunch, so I am away to make some soup. My mum will be so proud...