Up The Farway Tree

Update

My kidney function was a bit better on Monday (for medics Creatinine down to 140 from 163) but it is not quite normal yet. Newcastle want to wait for results of my anti rejection levels before making any more decisions, but it is likely they will just be rechecked when I am at transplant clinic in 2 weeks time. In the meantime I am trying to keep up the fluid intake. I am still not feeling too well though and it is all rather non specific - tiredness, achey muscles and the ocassional border line temperature. I just have no 'get up and go' and am really struggling with things like walking the dog, cooking dinner etc. I am not sure if this is still post op recovery or whether the antibiotics I am on might be making me feel off colour - I couldn't take this antibiotic pre transplant as it made me very sick, but I am taking it with anti sickness tablets this time - so it wouldn't surprise me if that's part of the problem. Otherwise though my chest is a lot clearer and there was nothing nasty growing in the sputum sample. The tablets I started for my sinus pain are also quite sedative which might be adding to the whole tiredness issue. So many things going on that it becomes hard to separate the problems out.

I also had fracture clinic this morning. I am going to get an MRI of my foot so we can see for sure whether it was fractured. If this is a non healing fracture I may need a cast for a prolonged period, so keep your fingers crossed it is something as simple as the way I walk (which is entirely possible!)

I must admit I am feeling quite down and fed up this week. I am so desperate to go back to how I felt only a few weeks ago. This tiredness and general feeling of being unwell takes me right back to how I always felt pre transplant and it's somewhere I do not enjoy revisiting. Not surprisingly I am very anxious as well, because I am sitting here worrying that this is rejection, or some strange infection and my mind races away. Not to mention the fact I have a plan to return to work on 16th Feb, so have this artificial date in my head by which time I want to be fully fit again. I know I just have to take it a day at a time and take the rough with the smooth....but I want some smooth again. I just want to be normal. I have spoken with Newcastle today and they want me to see how things are by the end of this week. I am due down there in 2 weeks anyway but if there are any ongoing worries I can always go down sooner. Hopefully it will all just settle down and I will be bouncing around again soon :-)