I was at transplant clinic yesterday and got an all round great report. Blood pressure was fine, chest x-ray clear and lung function up to 104% (fev 2.94l) which is 1% higher than last time. They call it "stable" - I call it an improvement :-) Everything else was looking ok - kidney function has been stable and I am now down to the maintenance steroid dose and it doesn't seem to have rocked the boat at all. I need to phone on Wednesday to check this weeks blood tests and drug levels but I am sure they will be all as before. I completely confused the lung function lady by putting down my maiden name on the arrival sheet and then responding to that when called only to then looked confused when she couldn't find any case notes for me! We worked it out in the end but no idea why I did that - I do use it at work so perhaps being in a hospital I just thought I was at work ;-)
I have to go back in 3 months which is not bad. I was hoping for 6 months but it was a different consultant I saw this time so I didn't want to argue it - and to be honest I would rather be kept a closer eye on especially when they are still adjusting medications at this stage.
We has a busy weekend with a wedding reception on Saturday night in Hawick. We headed down on Friday to stay with Andrew's mum and dad so at least got a wee catch up. Saturday was quiet during the day and we took Seb a long walk in the autumn leaves which he loves. The wedding reception was nice although we didn't make it a late night as I was heading to Newcastle the next day. On Sunday morning we managed to catch up with Andrews good friend who has been away travelling for 18 months and just arrived home last week, so that was really nice.
At the wedding
Seb was pretty confused my everything - arriving in Hawick but not being left by us, then mum arriving on Sunday and taking me away and then Andrew taking him home again. He is getting a lot better though and starting to take all this moving about and swapping and handing over in his stride. I think as long as one of his 'pack' his around then he is ok! I did get a lovely welcome yesterday which I was not expecting so he is definitely growing up.....maybe ;-)
Seb loving all the leaves!
Me and my wee boy!
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6 comments:
I've just found this blog and you really are an inspiration. My husband has been just placed on the transplant list and it's a very uncertain time.
Reading your story has really given me hope that he will get his 2nd chance too.
So happy for you that tx clinic is still giving you excellent reports :-) And the pics are fab - Seb looks so innocent...
Hi Jacqueline
Fantastic report again! Well done! It was great to have you both and wee Seb here at the weekend. We really enjoyed your company. Wee Seb is as good as gold isn't he? The photos are really nice. Have a good week at work but dont work too hard!! lol Anne John and Ross xxxxxxxxxxxxxxx
Aw Seb is actually smiling!
Thats great news about clinic, keep up the good work!
Yay for good clinic results!!
Congrats again, always great news to hear how good the results are :) And massive thanks to you and Andrew for the lovely card, just picked it up (still not used to having a mailbox that you have to unlock - not helped by there being about 8 keys on the set) so that was a nice surprise!
Hope you're all keeping well and good - and you'll have to let me know your Christmas lists soon (although not on my Blueyonder address, that's gone south for some reason. I think Virgin killed it. Sigh).
Take care for now,
C-x-x-x-
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