Up The Farway Tree

Bit fed up now

So I made it into work yesterday and got through clinic and a pile of paperwork - unfortunately my secretary is on annual leave this week so I kept getting handed little notes from patients calling about appointments I cancelled last week! At least I have held the fort and not fallen any further behind. I didn't make it into teaching this morning but I think that is allowed given the circumstances. I am not feeling a whole lot better than earlier in the week though - I feel a bit stuck at the moment. The main problem is now joint pain and stiffness with a general unwell feeling which I just can't shake off. I decided this morning that I really needed to stop wallowing and try and get moving so I went to run a couple of errands - just a 5 minute walk to post office but took me ages to recover when I got back! It's fair enough trying to rest up but sitting about also can make you feel lousy and even more tired so I have to try to keep going. I haven't been sleeping very well with night sweats and waking up a lot so that is probably not helping.

I do feel a bit pathetic at the moment because I have several friends who are waiting on their transplant calls and here I am at the other side moaning and moaning. I keep trying to stay focused and not lose perspective. I was looking back at my blog and felt a similar way last January after the fundoplication surgery - but I did get better and back to normal so must keep that in mind. I think feeling unwell also brings back a lot of emotions and feelings surrounding the pre transplant journey which I suspect is what makes it harder. On a positive transplant note however was the good news that one of the LLTGL Patient ambassadors, Rachael Wakefield, got her lung transplant yesterday. She was very quickly running out of time when the call came. I wish her all the best in her recovery and hope it is a smooth journey with a wonderful outcome.